If you aren’t in a position to live an easy, care-free life in a world like ours, then it helps to have people around you who would do anything to make sure you’re as happy as you can be while you have as much fun as possible. When you’re a 12-year-old girl–as Charley Hooper is–suffering from microcephaly, you can use all the help you can get. Hooper suffered this type of brain damage as the result of a birthing accident. When she was born, no one ensured her throat was clear. She went without oxygen for far too long.
Her eyes work, but her brain doesn’t process images. That means she’s effectively blind. She also requires a fair amount of help just to move about, because her brain can’t shoot the right signals where they need to go.
That hasn’t stopped her amazing mom from creating the world’s best bucket list for her little girl. She did it because she knew that Charley might not have as much time as everyone else does, and she wanted her daughter to experience as much as she could in the time remaining. This wasn’t a quick realization–it was a scary epiphany that only occurred after Charley almost died.
The bullet points on the bucket list aren’t always easy to achieve, either: one of them involved meeting Ed Sheeran.
When the list was originally conceived, it was meant to have a beginning, middle, and an end. Charley’s twelfth birthday was supposed to mark the culmination of that list, but instead, the list has not only continued to grow longer, it has grown indefinite. Charley’s mom became addicted to the sense of purpose that it gave her and her family, and the great experiences that it gave her daughter. That’s why she created a Facebook page dedicated to the challenge. Hopefully, these aspirations and moments to be cherished can show other people that some things are worth doing, and educate those who could use a little inspiration.
That’s not the end of it, though.
New Zealand has enjoyed a strong new advocate of maternal care and better accessibility for those living with disabilities. In addition to giving her own daughter with the experiences of a lifetime, she has also managed to provide hundreds of families with access to legal aid for parents in similar situations to their own. She did it using Action to Improve Maternity (or AIM), an organization dedicated to its namesake’s cause. On top of that, she is in the process of beginning charitable work that will bring truly disabled-accessible bathrooms to as many places in New Zealand as possible. With luck, this is only the beginning.